Saturday, November 12, 2011

Breakdown

Right now, I am sitting with a cup of
berry tea, it is steaming shadows on
the window next to me, shadows that
disappear as fast as they manifest,
I barely have time to draw a smiley face
in the window.

I haven't been drawing a lot of smiley faces 
lately.  Since my last happy post, 
I was so very anxious to show everyone...
just how okay I was.

I have been in the darkest days of my life.
After being on some serious narcotics,
(the big guns) for the duration of my two 
month illness.  I had to withdraw.
Basically, I lost my feeding tube,
the only nourishment I was getting,
and withdrawing, My head was in a blender.
That pretty much sums it up.

I suppose such honesty will be cursed by 
some and embraced by others.
I don't really care.

But after a week of what we thought was 
withdraws, Glenn and Kathy found me
laying on the bathroom floor,
Savannah was holding my hair so the
puke wouldn't saturate it, Henry was kneeling
beside me, and River was standing in the doorway.

They took me to the hospital where I was admitted 
for the fourth time in two months.
I was at the mercy of the internest 
who called my condition 
gastroparesis.  Which in lamen terms means
my colon is sort of paralyzed.
Thus....everything comes up instead of down.

The cure he claimed was quite simple,
a medication I take 30 minutes before meals 
and after.  He tells me this will pass.
I ask him when.
He tells me it could take two days to two years.

That night in the hospital, something just snapped,
I allowed all the anguish and fear and grief,
I have felt for the past few years run through my
soul, like a broken damn.

All I knew was that I could not go home.
I had to get away from my children,
and my beautiful family that had suffered so much
with me.  It was to painful to see the weariness
in their eyes, their beautiful loving eyes.

I was broken, and had to put the pieces back
together for them.
After sobbing in Garrett's arms all night,
he gave me a check and told me to go.
All of my sisters and I made a plan.
and my dad drove me to Sundance.

Sundance is where I come to heal.
And it is close enough to family,
should I need them.

For two days now,
I have walked, and walked,
built myself a fire and sat by it,
watching the embers glow.

I spent some time looking in the mirror
wondering what had become of me.
The me who was so much more than
I have become.

I haven't found her yet.
But I have found a great companion
in this beautiful land....God's tapestry...
surely I can see myself in every falling leaf
and remember I will be green again.








Notice my raccoon friend

Look closely at these ice cycles, hanging
on a delicate branch.  I kept waiting for 
them to fall.  But they held on.
It wasn't their time I suppose.

Every time I see this painting I am overcome
with a strange emotion.  I want to be free like this.
Perhaps its the brute strength, perhaps, it is
their endurance.  Perhaps, I wish I could endure
with a little more grace.

I took this last night as I looked in the mirror.
It must seem terribly narcisitic, but it was the 
first time I recognized myself in years.
I am done with my pain body.
At least in this one perfect moment.

Thank you...all of my soldiers who have
marched alongside me.  There are no words.
Just emotion in my heart and soul.
I hope you feel it.

Tuesday, October 25, 2011

goodbye pick line:)

Oh Happy Day...
                                             Today I went to I.V therapy for my last iron i.v
and to get out my pick line.
(cartwheel) (woo hoo)
Mama is getting her groove back.

I thought it was pretty special to
have Kathy there with me,
Since she has seen me through this.
I feel pretty brave posting this picture..
I am already forgetting about the miracle
of life, and worrying about how to loose
all this weighed I gained when they 
starved me for 6 weeks.
Sad.

I take a minute and remember that I
don't...  I won't let myself forget what
really matters.

Things like the joy I feel when I see this 
picture of kathy by my side.  The love
that has healed me, and the tender mercies.

The patient in the room next to me at
the huntsman center was not so lucky.
I overheard the Doctor come and and
tell him to enjoy what time he had left
because it wouldn't be very long.

Sometimes miracles come
and sometimes they don't.
I don't know the rhyme or reason behind
his plan.  But I know one thing for sure.
He has a plan for each of us.

I have thought a lot about how I have
been blessed to have an "illness" for a trial,
people know what to do when your sick,
dinners, cards, visits...flowers, prayers
and fasting...and trips to the temple...

But it's the other trials that break my heart,
the trials that cause silent suffering,
and painful game faces on the outside
when your dying inside.

I have had both.  I think women need a code
word for when they are having the silent trials...
like code blue or something.
Just a flag to raise without an explanation
that will say...

I need your prayers,
I need your faith,
I need your love.

Just raise your flag...
and I will be there.
~Always~


Monday, October 24, 2011

Good News~



I took this picture of my favorite Doc
 when he was changing
my T.P.N feeding tube.

I love this  picture of my Doc.
Because...
It shows his tender heart.
and steady eyes.

He talks with his eyebrows a lot.
Right now his eyebrows are telling me to
put my camera down and focus
on cleaning my other tube.

But we were watching M*A*S*H
at the time, and Clinger comes out
in one of his desperate attempts at A-walling it.
(Red dress with lacy hat and a matching purse)
And Garrett's serious Dr. brows 
change to his silly brows.
I like his silly brows.

But today for the first time in 7 weeks,
his beautiful brows lost their worry...

After a day spent at the Huntsman center,
and weeks of labs, labs and more labs.
I have been declared
CANCER free.
and my pancreas has now healed,
to a point that I can eat!
In fact for the first time all my labs
look beautiful!!!!

There is still a few bumps ahead,
like convincing my colon that I really 
am well enough to eat  more than baby food
and getting...
my iron levels back to a place
where I can stand vertical long enough
to shower.

But it is coming!
Which at one point, I wasn't sure if it would!
Thank you my Father in Heaven,
Thank you all of you....
who were there for me!

And to you...
My beautiful browed man,
thank you for standing beside me,
or should I say Kneeling beside me,
all of this time...
I love you to the moon.
to the moon~

Sunday, October 23, 2011

Love in Action

This is my new organized basement:)

It was going to be the perfect weekend.
The boys were off to the deer hunt,
and Shellie my big sister was coming to
help me organize my basement for the weekend.

But my body had other plans.
My colon is not being to kind
to the food I am finally able to eat.
and I am beyond anemic because
for what ever reason my body is not 
absorbing iron.

So after a night in the E.R
I came home and slept for 2 days.
I woke up to the above picture.

My devoted sister did it all on her own.
And she didn't stop there.
She and Ed did all the handy man work
I have needed done for so long,
without asking.
She fed my children, organized my
laundry room, Took the kids out
on little dates.

Every time Shellie comes to my house
she leaves it better than she found it,
She made these  curtains:

She decorated for Halloween
organized my coat closet,
and for the past two years she has put 
up my Christmas decorations with me.

I have written three posts tonight,
because I so urgently want to share
all of the tender mercies
my family and friend have 
shown me.
(And I haven't even started Thanking kathy)
God bless them.
Everyone of them.

I am having a procedure tomorrow 
at the huntsman center,
and to be honest, I am kind of scared,
I am actually feeling all kinds of anxiety 
in side about...well everything,
especially my kids, .....

I guess to be quiet honest,
I have this fear that I am going 
to burn everyone out.  
But time after time...
just when I think I am going to
have to make the last few miles 
on my own.

You step up and show me that you
are there.  I love you all for that.

Thank you for being their for my kids,
they have been so loved.

Sisters


If there is one thing I know for sure,
is that we can't do it alone.
I have read hundreds of books and 
spent hours taking classes about how
we can train our brain to attract exactly what we want
out of life.
And yes, we do create what we focus on,
I don't argue with that.

But after all those books and all those classes,
I know one thing for darn sure.
We can't do it alone.
We weren't meant to do it alone.

And no matter how pure our thoughts are..
there will come a time when God in
his love will hold us over the fire and 
smooth us out...
in a way that only he can.

I have also learned that the only thing that really
impresses others....is the way we love them.
all the accolades and accomplishments in 
the universe only impress if you use them
to strengthen and uplift the people 
in your life.

Today I thank God for sisters.
Perhaps I should say sister in laws...
but nope.
They are my sisters
and they have been there for me through thick
and thin.
They come to me almost daily...
do my wash, my dishes,
lay in bed with me and share their thoughts,
they love my children and invest their time in my children.

We had a silly day last week, because I told them
I wanted pictures of us together...
small problem...no photographer,
so we took a million pics ourselves,
this is one of the few that turned out:)

It takes a brave person to stand next
to any of my sisters...
They are, as you can see, drop dead
beautiful.

But theirs is a beauty that comes from their
hearts.  They love pure and undiluted.
 They have shared their
stories and worries with me and
let me do the same. 
I will always love them for showing up
good times and bad.
And I want you to know
that I will always be here for you.
~Always~





Kristalyn cutting my boys hair.


A beautiful day in the neighbor hood

These are pictures, from the walk about Henry and I 
took this week.  
I grabbed my black coat, hat, and jacky pack,
Henry took his new spider man bike.
We started off with Amanda.
My neighbor who has been there
through the thick and thin of
my life since the day we moved in.
Her husband Kirk is usually by her side
doing what he can to help out.
He is currently helping River get his eagle.
~Blessings~
This is my friend Heather,
who just happened to be out with
her son xander..
is Henry's best buddy.                                                                                
This is My friend kari with Amanda.
I was beginning to feel pretty blessed to see 
so many Friends out and about on this
beautiful day...
This is Marci's house.
Uber creative that girl.
She is even creative in the way she serves me,
She has brought me a tea maker with
dozens of my favorite flavor teas,
dumb dumb suckers, my favorites lavender
lotions....she even took the time to cut
out the seeds in cucumbers so I could eat them...
the list goes on with Marci...she has a gift for 
knowing just what and just when.
love that girl.

This is my friend Dana's house.
I love the way she celebrates.

As we walked Henry would stop for a bug
here and a worm there.
I love my stinky bug loving boy

This is my friend Julie.
She came to the hospital and did my hair,
and waxed my brows and my embarrassing
mustache that I inherited from my grandma.


Julie was on her way to do another friends hair,
Wanda.  Wanda is one tuff woman. she  
was in a bad car accident, and hasn't been able to walk
since she was 16 years old.
She had a back surgery...
one she should have had years ago.
I am telling you this women is amazing.
All women are amazing.
I wish I had a picture of all the incredible women
in my life....
Like Ruth,  my visiting teacher,
who has made sure that I didn't have to do this alone,
that my family was fed, and loved.
Thank you.
Thank you my friends.

I decided to hop in the car with Julie, and 
my other friend Stephanie,
who were going to do
 Wanda's hair.
I'm telling you....
My neighborhood is the bomb.

I am tired today,
and I simply don't know how to write all that is 
in my heart. But my heart is full of gratitude
for the amazing kindhearted people
I have in my life.

I am so grateful I didn't have to do this alone.
Your are God's hands.
All of you.


Thursday, October 20, 2011

Aloha

This Package arrived in the mail for me yesterday.
It was packed to the brim with Aloha from my Ohana
in the islands I love.

Dozens of letters, chocolates, cookies,
 pictures,  more chocolates, macademian nuts,
and my favorite quava juice,
overflow and overwhelm my heart.


It has just about everything but the sea itself.
Oh my sweet friends,
I feel the love
and my gratitude is bigger than the surf
on the north shore in January.

I wish I could pack myself up in that
box and return to you fed ex style.

Then we could sit by the sea,
and feel the sand between our toes,
and find precious seashells
that remind us while we are being
tossed against the rocks of uncertainty,
that
God is just smoothing us out
and shaping us in to some thing
more precious and more beautiful
than our jagged edges.

oh I send my Aloha.
Aloha on steroids.
ya.
Thats how much I love you!
Mahalo my dear friends!

Puffer fish face

I am sitting in I.V therapy, getting myself some iron, and decided to take a snap shot
to remind myself Just how lovely I am.  Who knew that after 6 weeks of starvation
I would look like an albino puffer fish.  So very lovely.
Don't be jealous.

Wednesday, October 19, 2011

Grandma's house

Every Fall,
we love to pick fruit off of grandpa's fruit trees.
I love everything about this tradition.
The sticky fingers, the sour bites,
and rusty ladders...

But mostly, I love to swing on their hammock...
Never... Ever have I found a place in this world,
that could hold a candle,
to the upside down view of the most beautiful
walnut trees I've ever seen.

If you catch a ride just before sunset...
during the golden hour.
you will see millions of particles of light
spilling between the green
and filtering it like a gift made just for you.
If I have any say in what my heaven would look like,
it would defiantly have a hammock.

Come to think of it...
I think heaven feels a lot like their back yard,
With echoes of laughter, and love,
and memories good and bad are exchanged
for savoring the moment...
right here...right now.



If the scripture that claims
By their fruits ye shall know them...
is true...
Then that's all I have to say about these
two amazing people.
Because they sure have a lot of good fruit.
And they share it.


How blessed are my children
to have a grandpa and grandma,
who will always be there for them,
through thick and thin,
sweet or sour.

I love the way I feel around them...
It is a feeling that reminds me I am safe,
because I am loved
good days or bad.
Shadowed or shining.
And this is why my children love to
be at grandma and grandpa's house...
Love.
pure. simple. consistant
Love.
Thank you for the constant love

Thank you.  Thank you.
All of you.
Today I ate some apple sauce!

Sunday, October 16, 2011

Knowing eyes...




It was a Beautiful weekend,
I had two days in a row with no nausea,
and the best part...
I can now eat applesauce and sherbet
with out my colon confusing it for a porcupine.

Today I woke up determined to go to Sacrament,
There has never been a better time for me
to teach my children where to turn 
when all the leafs fall.
but I must say
It's always quite the dance trying to get our family
to church on time,
and I was having so many issues with my jackypack,
that I almost wondered as I sat down in my seat
with my tubes all tangled around me
if it was really worth the possible risk of 
infection that I was risking.

But then I realized that...
behind us sat my dear friend,
who lost her child this week. She was
Stoic in her faith and in her spirit, but
her swollen eyes carried the burden of her
grief and her faith.

I call them "knowing" eyes.
Knowing eyes are earned like a purple heart
to a brave soldier 
Both an honor and a burden they carry....
The honor of knowing they are on the Lords errand...
and the burden of the price they
paid to see life a new.

In front of us sat a family that lost their child
in another way. 
In in her eyes I saw the "knowing" as well.

I hope I have earned my Knowing eyes,
The eyes that see past the weariness,
arrogance and weakness of others,
I hope my eyes can pierce right through
silly shallow agendas
straight into the heart of those I care about.
So I can love them and serve them
in their language.

I hope I can give my children knowing eyes
and then I remember they must
earn them, through their own heartaches,
the thought makes me sad,
thinking of my children suffering in any way,
I bet it hurts God too.

* Here are some pics from our drive up to Sundance today.



Two blue birds joined us.
I think they were a love note from mom...
My dinner: apple sauce, cucumber slices:)
and Jacky pack...


Saturday, October 15, 2011

Our magic Garden


Our Magic Garden...

Last night,
We lit up a dozen or so candles,
and put them in the pumpkin patch...
in our Garden...
our magic Garden,
(magic because it can grow pumpkins with all the weeds in it).
But also magic because we
planted it in granny's name
the spring after she died.

Savannah grabbed some blankets,
Daddy grabbed some chairs,
and
I grabbed my black coat and
 my witch hat 
with Jacky pack in tow...

 When I glanced in the mirror I thought
that perhaps I should have been a ghost,
because my pale face and dark circles,
are enough to scare something fierce...
But wow...Isn't she beautiful.
Inside and out that one.

Then we stood in a sort of circle
and picked numbers,
Malia got the first turn...
But we put a spin on our picking tradition this year,
Before picking it from the vine,
we had to name one bad habit that we
would "spook" out of our lives this year.
Malia's was spelling,
Garrett wanted to spook away my pancrease
and I am going to spook away my
diet coke...

Henry just wanted to spook his pumpkin.
When he found the perfect one,
he curled up in my arms,
and together with Aunty Shellie,
grandma kathy and grandpa Glenn,
we quietly watched the candles burn.

And with every flicker of light,
I Thanked God for my garden,
my home and my family.


Then I silently prayed for more 
faith.  More meekness and more
patience.
But I must say that 
Today was a great day...
I held some apple sauce down!!!